The national Learning Disabilities Mortality Review (LeDeR) programme was established in 2017 following the Confidential Enquiry into the premature Deaths of people with Learning Disabilities (CIPOLD). LeDeR began reviewing the lives and deaths of autistic adults with no learning disability in January 2022.
CIPOLD, and subsequent research, has shown that people with a learning disability and autistic people die earlier than the general public, experience difficulties with the quality of the care they receive and encounter barriers to accessing health and social care services. LeDeR is a service improvement programme which aims to improve care, reduce health inequalities, and prevent premature mortality of people with a learning disability and autistic people by reviewing information about the health and social care support people received.
The learning from reviews is then converted into actions which aim to deliver local service improvement. ICBs are mandated to publish a LeDeR annual report every year giving information about the lives and deaths of people with a learning disability and autistic people. A LeDeR annual report collates all the information and learning our ICB has taken from the completed reviews and received notifications within a set reporting period. You can find the national NHS LeDeR report on the NHS website, and read reports for our local health and care system below.
ICB reports
The first LeDeR report due to be published by NHS Norfolk and Suffolk ICB will be added to this page.
You can find LeDeR reports and associated documents and resources from the ICB’s predecessor organisations, NHS Norfolk and Waveney and NHS Suffolk and North East Essex ICBs.
How to report a death of someone with a learning disability or an autistic person
Anyone can use the LeDeR online form to report the death of an autistic adult or an adult with a learning disability.